Monday, October 03, 2005

One Mind

Early Saturday morning I took off in the van that
was donated to Kari and Aaron. (More about the
vehicle later!). I arrived late in the evening. "I
love you. You've come here so much," she said when I
walked into her room. She remembered that Linda
couldn't come because when the accident happened she
had taken an incomplete in the last class she needed
to finish her degree, but now was up against the
deadline to make up the work. She asked about Daniel
and Bryan and a few more things. Aaron wanted to see
the van, and as we walked out to it he said that that
was the longest, most coherent conversation Kari had
had in three days. He and Jan Yessa were both
exhausted, so I am glad to be able to stay the night
tonight so they can both get some rest.
Kari still struggles to find some words, and gets
things mixed up now and then (and now and then it's
funny and we all laugh at it!), but she is doing so
much better these last few hours. She worries about
doubting God and not being good enough and that makes
everything harder on her. Hopefully, she'll work
through these things as we talk to her and tell her
she's OK--all of her, even her doubts.
The pain in her arms, especially the right one,
continues and is sometimes so intense that she has to
bite down on a towel. Yet I noticed that when her arm
went into a spasm she wanted people to hold it down
really hard. We're trying something new, and it seems
to be a little better. When the arm spasms, I've
tried to tell her to let it go, not fight it, and
breathe with me deeply in rhythm. Fighting it, the
intense pain would last 30-45 seconds, but going with
it seems for now to have reduced the time to 10-15
seconds. "It's like Lamaze, Kari," I said. She asked
a nurse who was standing by, "Have you ever had a
baby?" "Yes, dear," the nurse replied. "Does it hurt
as bad as this?" "I don't know, I've never had arm
spasms, but I think probably having a baby is more
painful." So I'm thinking that if Lamaze can help
with that, it can help with this.
Very early on, I remember how she fought so hard
against the ventilator and the tubes--so hard that
they had to put blocks in her mouth and her brother
Dustin had to get pretty severe with her. It's a
theme we come back to again and again: letting go, not
fighting things, relaxing. So much, much easier said
than done, of course, but we can all see the truth in
it. The physical pain is still there and very
intense, but not quite as much if we can let go more
(again, easier said than done). Sometimes we can even
cut the severity by half or two-thirds. Spiritually
we have to let go of feeling we're not good enough,
feeling that our doubts are things we can't have.
Worry, too. Sometimes when Kari is only on the edge
of coherence she's kind of free to say anything that
pops into her head. "You have such a deep line in
your forehead," she said to me last night. "Now Kari,
let's not focus on Dad's forehead so much," Aaron
said. "But it's so deep," Kari continued. "Richard,
how did it get so deep." "Worry," I said. "In fact,
I've had it since I was a little kid." I have, too,
and these days when I see it in a mirror it's become,
ironically, a sign which helps me worry less--though I
still do plenty of it.
When you pray for Kari please pray that she can
relax and let go, physically and spiritually. Imagine
peace and sleep and laying down of worries and other
burdens. Feel these things flowing through her mind
and body: relaxation, letting go. But as I write to
ask you to pray and imagine this for Kari I feel even
more strongly that we feel all this for ourselves too.
We are one mind and one body and one spirit, and
tonight this means to me that we can all pray for and
feel this peace and relaxation and letting go as one
people, all of us praying and thinking one set of
thoughts. What Kari is going through has made me feel
how much we need peace and rest and letting go both as
individuals and in what we are as one mind, one body,
one spirit together. As often as you think of her,
pray for peace and letting go.

--Richard R. Guzman

Saturday, October 01, 2005

Update 10/01 evening

Hello All—

Well, it’s been a long day, but things are looking better.  Kari slept from about 12:00 to 2:00 and then woke up and was doing better.  Still not able to talk clearly, and less yelling of the nonsense, but she was still not normal.  She ate a small lunch and recognized me.  We were able to have a very broken conversation, but the longer she stayed awake, the worse she got.  By 4:30 she was yelling and shaking violently again.  Jan (whose house we had our wedding reception at and who took us on the “Dead tulip Festival” that is in the pictures section) must have the magic sleepy touch, because after 2 hours of trying to get her to sleep, which was very frustrating, Jan walked in and 20 min. later she was peacefully asleep.  I went out to grab dinner and returned around 8:00 to find Kari almost totally normal.  Very groggy and still fishing for some words, but definitely “all there” and able to have a normal conversation.  She started to wear down around 10:30, slipping back out of reality when she had spasms or pain.  It is now 12:30am, and Kari seems to be getting back to sleep.  For the last hour she hasn’t made much sense, so it seems pretty obvious to us that what Dr. Balazy said is right and that she basically couldn’t handle things anymore.  It’s the body’s way of screaming “get more sleep!!!” at you.  She usually does great after long periods of sleep.  Anyways, my dad arrived today with the van that was donated to us, and it looks like it will work fine for us.  More pictures will be on the website.  If you haven’t noticed, the website had a major overhaul which I think looks great.  There’s a nice picture on the opening page.  Also, if you have time, read about John and Cyndi’s visit.  It will give you a better Idea about the day to day activities and has some great pictures on it.  Anyways, I’m falling asleep here, so take care and thank you for praying.

Aaron.

Update 10/01 (12:00 pm)

Hello All-

10:00 am  
I wish I had better news.  I actually talked to Kari on the phone around 2:30 yesterday, and she seemed groggy, but she was fairly normal and able to carry on a short conversation.  When I returned to the hospital around 3:30, she was sleeping and I expected that woke up she would be back to normal.  Around 4:30, the techs came in to take her vitals, and she woke up and started panicking again.  Her spasms at that point got worse, and she started screaming and “help me” along with a mix of syllables and sounds that did not make any sense.  She eventually did relax though, and Kari slept through most of the evening last night, from about 7:30pm till 11:00pm.  After that she slept on and off until 6:00am, waking up when they needed to turn her or take her vitals.  Since about 7:00 this morning, Kari has withdrawn even further.  Her spasms are incredibly strong, about as strong as I could clench my arm, and she has started biting down and locking her jaw.  She bit her lip so hard this morning that it bled.  Luckily, Jan Yessa from our old church in St. Charles, IL, was here and she stayed the night with Kari.  I got my first real sleep since Tuesday night.  When I got to the hospital around 9:30, Kari did not totally recognize me.  A few times, she asked me to help her, but she did not respond at all to me speaking to her.  She is becoming very frustrated with her collar and even pushed it off with her jaw.  Technically, she is allowed to have her collar off, but she is shaking her head and neck back and forth so violently that it would be unsafe to leave it off.

As for the plan of attack, Dr. Balazy was in to see her this morning and I spoke with him about half an hour ago.  The plan to use a combination of muscle relaxers, anti-anxiety and anti-spasticity drugs to try to calm her down and get some rest.  If that doesn’t work soon, which it looks like it isn’t, they will try anti-psychotic drugs.  The hope is that by allowing her brain to relax, they can gradually bring her back to normal.  Dr. Balazy said that he expects her to come out of this, but it could be a couple of weeks.  The anti-psychotic drugs have some possible side effects of making it difficult to control her movements.  I asked him how he thought she got like this, and he believes that she simply reached a breaking point on both a physical and emotional level.  The intense pain for the past two weeks and really for the past month has just been too much for her and she has withdrawn from reality.  Having your muscles being continuously contracted never really allows you to get any good sleep.  Combined with not sleeping at all Wednesday night and the increased spasms, it made Kari feel that she had even less control and raised her anxiety.  By Thursday evening, she just couldn’t take it anymore.


12:00 pm
Well, I got interrupted while writing this entry and by now I have a little bit better news.  Kari can now recognize me and at one point was able to name everybody in the room.  She even asked to give everybody a kiss!!  Even though she’s still not all there, she’s still a sweetie.  Anyways, she’s asleep now and looking very peaceful.  I’m hoping and praying that when she wakes up this time it won’t be like yesterday.  She usually gets scared when she gets woken up suddenly, so we’ve told all the nurses and techs to try to wake her up gently.  They usually try to do their thing without waking her up, but if she does wake up, she’ll probably freak our again, so we’ll see how this works.  I know that many of you have been praying, and we need it now more than ever.  Thanks.

Aaron.