...SIGH... Big sigh there. My caretaker just called and gave us her two weeks notice. To say I'm frustrated is a massive understatement. The last couple of days have been so rough with her. We really appreciate all she's done for us the last 10 months, but she was unwilling to accept the idea that we don't want to pay her for the days she doesn't work. Are we being unreasonable? I think not. AAAAHHHHHHHHHHHHHHHH!!!
Anyway--right before she called I was getting ready to post this anyway.
Aaron and I have been talking and praying about our future concerning children, grad school for Aaron, how are we going to keep paying for caretakers out of our own funds. We estimate that we will be out of money in about a year from our fund. We've applied for the available state funding (Medi-Cal) that would pay for home health services. We were denied because we're married and Aaron's salary exceeds the amount you're allowed. I have appealed this and am on a waiting list (for the last 10 MONTHS) for a special waiver program that will waive Aaron's million dollar (I'm kidding) salary. Starting in January we are finally eligible for Medicare; but I found out today that I'm basically NOT DISABLED ENOUGH for them to cover home health care. So I guess it could be worse--at least Medicare thinks it should be. The good thing with Medicare is that they will cover physical and occupational therapy. This is great news. I haven't had PT/OT since I left Craig 2 years ago b/c our insurance benefit ran out. I've considered getting a job, but if I did that most of the "benefits"-or what I like to call "perks to being paralyzed"- would be eliminated. For example, my school loans do not have to be paid back since I'm permanently physically disabled. But if I start working, it compromises that benefit.
So Aaron and I have decided we have 3 options: 1. Become really poor so we get better benefits. 2. Become really rich so we wouldn't need to be dependent on the government. 3. Become famous so we could live off the royalties of published books or motivational speeches.
Please pardon my sarcasm...it's just been a really frustrating few days.
There is a 4th option that we've decided is the most feasible. Fundraising. I have no idea how to go about doing that. I've done lots of fundraising for youth groups, but this isn't exactly like a car-wash or bake sale type of a thing.
So my question for all of you is: Does anyone have any suggestions how to go about doing this? Does anyone know of any legal loopholes in the healthcare system?
We are feeling kind of desperate. We want a family. Aaron has to go to grad school to make it into the next income level. He's maxed out on the bachelor's degree pay scale already. These things won't happen unless we figure this out.
I don't know who still checks our website here, but this has been our largest web of communication in the last couple of years.
We love you all and are so grateful for each of you.
One more thing...Please be in prayer for us. We absolutely trust God to supply and provide for us. He has so far.
Thanks for reading my rambling thoughts...We welcome and NEED your thoughts and comments. If they are personal you may email us at firstname.lastname@example.org.
Blessings to all of you-